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91_HB0596eng HB0596 Engrossed LRB9102397SMpr 1 AN ACT regarding hearing screening for newborns. 2 Be it enacted by the People of the State of Illinois, 3 represented in the General Assembly: 4 Section 1. Short title. This Act may be cited as the 5 Hearing Screening for Newborns Act. 6 Section 5. Mandatory hearing screening. By December 31, 7 2002, all hospitals performing deliveries shall conduct 8 hearing screening of all newborn infants prior to discharge. 9 Section 10. Reports to Department of Public Health. 10 Hospitals shall report information about each child with a 11 positive hearing screening result to the Illinois Department 12 of Public Health. 13 Section 15. Department of Public Health to maintain 14 registry of cases. The Illinois Department of Public Health 15 shall maintain a registry of cases of positive hearing 16 screening results, including information needed for the 17 purpose of follow-up services. 18 Section 20. Hearing screening advisory committee. By 19 July 1, 2000, the Department of Human Services shall organize 20 an advisory committee including representatives from the 21 Department of Public Health, the University of Illinois 22 Division of Specialized Care for Children, public and private 23 hospitals, pediatric associations, audiologists, health 24 insurance plans, hearing-impaired persons, parents of 25 hearing-impaired children, and early intervention services. 26 The committee shall: 27 (a) Develop and conduct training for hospitals 28 implementing newborn hearing screening. HB0596 Engrossed -2- LRB9102397SMpr 1 (b) Develop a tracking and follow-up program for 2 diagnostic hearing testing for those infants failing 3 hospital-based screening, in order to diagnose congenital 4 hearing loss. 5 (c) Develop a referral system to early intervention 6 services and hearing aids for those infants diagnosed with 7 hearing loss. 8 (d) Develop an application process for financial 9 assistance by the Division of Specialized Care for Children 10 for follow-up diagnostic hearing testing of newborns failing 11 hospital-based screening. 12 (e) Develop educational and informational materials for 13 hospital personnel, health care professionals, and parents on 14 appropriate follow-up procedures for infants failing 15 hospital-based screening. 16 (f) Monitor any reports made available to the State with 17 respect to the hearing screening status of all newborns. 18 (g) Monitor the availability of third party reimbursement 19 for universal hospital-based hearing screening of newborn 20 infants. 21 (h) Review administrative rules and make recommendations 22 to the Department regarding such rules. 23 Section 25. Objections to test. The provisions of this 24 Act shall not apply when the parent or guardian of the 25 newborn infant objects to hearing screening on the grounds 26 that the screening conflicts with his or her religious 27 beliefs and practices. A written statement of the objection 28 shall be presented to the physician or other person whose 29 duty it is to administer and report the screening under the 30 provisions of this Act. 31 Section 30. Rules. The Department of Human Services 32 shall promulgate rules necessary to implement this Act. HB0596 Engrossed -3- LRB9102397SMpr 1 Section 99. Effective date. This Act takes effect upon 2 becoming law.