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91_HB1242
LRB9101390SMpr
1 AN ACT in relation to long-term care planning.
2 Be it enacted by the People of the State of Illinois,
3 represented in the General Assembly:
4 ARTICLE 1. General Provisions
5 Section 1-1. Short title. This Act may be cited as the
6 Long-Term Care Planning Strategy Act.
7 Section 1-5. Purpose. This Act is created to achieve a
8 broad awareness and use of alternatives to nursing homes to
9 serve the increased number of people needing long-term care.
10 ARTICLE 5. Long-Term Care Planning Committee
11 Section 5-5. Long-term care planning committee. The
12 Director of Aging shall establish, by July 1, 2000, a
13 committee of individuals who are knowledgeable in the areas
14 of long-term care, geriatric care, community services for the
15 elderly, long-term care facility inspection, or quality of
16 care assurance. The Director of Aging, or his or her
17 designees, shall chair and convene the committee. The
18 committee may utilize the expertise and time of other
19 individuals employed by the Department as needed. The
20 committee shall meet as often as necessary to accomplish its
21 duties, but at least quarterly. The committee shall
22 establish procedures, including public hearings, for allowing
23 regular opportunities for input from consumers of long-term
24 care services, advocates, trade associations, facility
25 administrators, county agency administrators, and other
26 interested persons.
27 Section 5-10. Duties. The committee shall identify
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1 long-term care issues requiring coordinated policies and
2 shall conduct analyses, coordinate policy development, and
3 make recommendations for effective implementation of these
4 policies. The committee shall refine State long-term goals,
5 establish performance indicators, and develop other methods
6 or measures to evaluate program performance, including client
7 outcomes. The committee shall review the effectiveness of
8 programs in meeting their objectives.
9 The committee shall also do the following:
10 (1) Facilitate the development of regional and
11 local bodies to plan and coordinate regional and local
12 services.
13 (2) Recommend a single regional or local point of
14 access for persons seeking information on long-term care
15 services.
16 (3) Recommend changes in State funding and
17 administrative policies that are necessary to maximize
18 the use of home and community-based care and that promote
19 the use of the least costly alternative without
20 sacrificing quality of care.
21 (4) Develop methods of identifying and serving
22 seniors who need minimal services to remain independent
23 but who are likely to develop a need for more extensive
24 services in the absence of these minimal services.
25 (5) Develop and implement strategies for
26 advocating, promoting, and developing long-term care
27 insurance, and encourage insurance companies to offer
28 long-term care insurance policies that are affordable and
29 offer a wide range of benefits.
30 Section 5-15. Goals of the committee. The long-term
31 goals of the committee include the following:
32 (1) Achieve a broad awareness and use of low-cost
33 home care and other residential alternatives to nursing
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1 homes.
2 (2) Develop a statewide system of information and
3 assistance to enable easy access to long-term care
4 services.
5 (3) Develop sufficient alternatives to nursing
6 homes to serve the increased number of people needing
7 long-term care.
8 These goals are designed to create a new community-based
9 care paradigm for long-term care in order to maximize
10 independence of the older adult population and ensure the
11 cost-effective use of financial and human resources.
12 Section 5-20. Reports. The committee shall prepare a
13 biennial report and the chair shall deliver this report to
14 the legislature beginning January 31, 2001, listing progress,
15 achievements, and current goals and objectives. The chair
16 shall recommend changes in, or additions to, legislation
17 necessary or desirable to fulfill their responsibilities.
18 Section 5-25. Data. The committee shall have access to
19 data from the Illinois Department of Public Aid, the
20 Department of Public Health, the Department of Human
21 Services, the Department of Insurance, and the Department on
22 Aging for carrying out its duties under this Act. The
23 committee may have access to data on persons, including data
24 on vendors of services, to carry out the purposes of this
25 Act. If the committee receives data that is collected,
26 maintained, used, or disseminated in an investigation,
27 authorized by statute and relating to enforcement of rules or
28 law, the committee or the chair shall not disclose that
29 information except under statute or valid court order, or to
30 a party named in a civil or criminal proceeding,
31 administrative or judicial, for preparation of defense.
32 Data described in this subsection is classified as public
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1 data upon its submission to an administrative law judge or
2 court in an administrative or judicial proceeding.
3 Section 5-30. Long-term care research and database. The
4 committee shall collect and analyze State and national
5 long-term care data and research, including relevant health
6 data, information, and research relating to long-term care
7 and social needs, service utilization, costs, and client
8 outcomes. The committee shall make recommendations to State
9 agencies and other public and private agencies for methods of
10 improving coordination of existing data, develop data needed
11 for long-term care research, and promote new research
12 activities. Research and data activities shall be designed
13 to accomplish the following:
14 (1) Improve the validity and reliability of existing
15 data and research information.
16 (2) Identify sources of funding and potential uses of
17 funding sources.
18 (3) Evaluate the effectiveness and client outcomes of
19 existing programs.
20 (4) Identify and plan for future changes in the number,
21 level, and type of services needed by seniors.
22 ARTICLE 10. Seniors' Agenda for
23 Independent Living Projects
24 for a New Long-Term Care Strategy
25 Section 10-5. Purpose, mission, goals, and objectives.
26 (a) The purpose of implementing Seniors' Agenda for
27 Independent Living (SAIL) projects under this Article is to
28 demonstrate a new cooperative strategy for the long-term care
29 system in the State.
30 The projects are part of the initial plan for a 20-year
31 strategy. The mission of the 20-year strategy is to create a
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1 new community-based care paradigm for long-term care in order
2 to maximize independence of the older adult population, and
3 to ensure cost-effective use of financial and human
4 resources. The goals for the 20-year strategy include the
5 following:
6 (1) Achieve a broad awareness and use of low-cost
7 home care and other residential alternatives to nursing
8 homes.
9 (2) Develop a statewide system of information and
10 assistance to enable easy access to long-term care
11 services.
12 (3) Develop sufficient alternatives to nursing
13 homes to serve the increased number of people needing
14 long-term care.
15 (5) Build a community-based approach and commitment
16 to delivering long-term care services for elderly persons
17 in their homes.
18 (b) The objective for the fiscal years 2000 and 2001
19 biennial plan is to continue at least 4 but not more than 6
20 projects in anticipation of a statewide program. These
21 projects will continue the process of implementing the
22 following:
23 (1) A coordinated planning and administrative
24 process.
25 (2) A refocused function of the preadmission
26 screening program.
27 (3) The development of additional home, community,
28 and residential alternatives to nursing homes.
29 (4) A program to support the informal caregivers for
30 elderly persons.
31 (5) Programs to strengthen the use of volunteers.
32 (6) Programs to support the building of community
33 commitment to provide long-term care for elderly persons.
34 This is done in conjunction with an expanded role of the
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1 long-term care planning committee as described in Article V
2 of this Act. The services offered through these projects
3 will be available to those who have their own funds to pay
4 for services, as well as to persons who are eligible for
5 medical assistance.
6 Section 10-10. Design of SAIL projects; local long-term
7 care coordinating term.
8 (a) The Director of Aging in conjunction with the
9 long-term care planning committee's long-range strategic
10 plan, shall contract with SAIL projects in 4 to 6 counties or
11 groups of counties to demonstrate the feasibility and
12 cost-effectiveness of a local long-term care strategy that is
13 consistent with the State's long-term care goals identified
14 in Section 10-5. The Director of Aging shall publish a
15 notice announcing the availability of project funding and
16 giving instructions for making an application. The
17 instructions for the application shall identify the amount of
18 funding available for project components.
19 (b) Projects may be selected if they demonstrate the
20 following:
21 (1) The objectives of the local project will help
22 to achieve the State's long-term care goals as defined in
23 Section 10-5.
24 (2) The project proposal demonstrates that local
25 agencies have the ability to perform the project as
26 described and that implementation of the project has a
27 reasonable chance of achieving its objectives.
28 (3) The applicant documents efforts of cooperation
29 with consumers and other agencies and organizations, both
30 public and private, in planning for service delivery.
31 (4) The applicant shall list performance outcomes
32 and indicators that meet the State's objectives. The
33 project strategy shall provide for the following:
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1 (A) Accessible information, assessment, and
2 preadmission screening activities as described in
3 Section 10-15.
4 (B) An increase in numbers of alternative care
5 clients served, including those who are relocated
6 from nursing homes, that results in a reduction of
7 the medical assistance nursing home caseload.
8 (C) The development of additional services
9 including adult family foster care homes, family
10 adult day care, assisted living projects and
11 congregate housing service projects in apartment
12 buildings, expanded home care services for evenings
13 and weekends, expanded volunteer services, caregiver
14 support, and respite care projects.
15 Section 10-15. Accessible information, screening, and
16 assessment function.
17 (a) The projects selected by and under contract with the
18 Department on Aging shall establish an accessible
19 information, screening, and assessment function for persons
20 who need assistance and information regarding long-term care.
21 This accessible information, screening, and assessment
22 activity shall include information and referral, early
23 intervention, follow-up contacts, telephone screening, home
24 visits, assessments, preadmission screening, and relocation
25 case management for the frail elderly and their caregivers in
26 the area served by the county or counties. The purpose is to
27 ensure that information and help is provided to elderly
28 persons and their families in a timely fashion when they are
29 making decisions about long-term care. These functions may
30 be split among various agencies, but shall be coordinated by
31 the local long-term care coordinating team.
32 (b) Any information and referral functions funded by
33 other sources, such as Title III of the Older Americans Act,
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1 Title XX of the Social Security Act, and the Community Social
2 Services Act, shall be considered by the applicant in
3 establishing this function to avoid duplication and to ensure
4 access to information for persons needing help and
5 information regarding long-term care.
6 Section 10-20. Service development and delivery. In
7 addition to the information screening and assessment
8 activity, the applicant may include provisions for the
9 following:
10 (1) The addition of a full-time staff person who is
11 responsible to develop the following services and recruit
12 providers as established in the contract.
13 (i) Additional adult family foster care homes.
14 (ii) Family adult day care providers.
15 (iii) An assisted living program in an
16 apartment.
17 (iv) A congregate housing service project in a
18 subsidized housing project.
19 (v) The expansion of evening and weekend
20 coverage of home care services as deemed necessary
21 by the local strategic plan.
22 (2) Small incentive grants to new adult family care
23 providers for renovations needed to meet licensure
24 requirements.
25 (3) A plan to apply for a congregate housing
26 service project authorized by the Department on Aging, to
27 the extent that funds are available.
28 (4) A plan to divert new applicants to nursing
29 homes and to relocate a targeted population from nursing
30 homes, using the individual's own resources or the
31 funding available for services.
32 (5) One or more caregiver support and respite care
33 projects, as described in Section 10-25.
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1 Section 10-25. Caregiver support and respite care
2 projects.
3 (a) The Director of Aging shall establish up to 36
4 projects to expand the respite care network in the State and
5 to support caregivers in their responsibilities for care.
6 The purpose of each project shall be to:
7 (1) establish a local coordinated network of
8 volunteer and paid respite workers;
9 (2) coordinate assignment of respite workers to
10 clients and care receivers and assure the health and
11 safety of the client; and
12 (3) provide training for caregivers and ensure that
13 support groups are available in the community.
14 (b) The caregiver support and respite care funds shall
15 be available to the 4 to 6 local long-term care strategy
16 projects designated in subsection (b) of Section 10-10.
17 (c) The Director of Aging shall publish a notice to
18 solicit proposals from public or private nonprofit agencies
19 for the projects not included in the 4 to 6 local long-term
20 care strategy projects discussed in subsection (a) of Section
21 10-10.
22 (d) The Director of Aging shall select grantees based on
23 the following criteria:
24 (1) The ability of the proposal to demonstrate need
25 in the area served, as evidenced by a community needs
26 assessment or other demographic data.
27 (2) The ability of the proposal to clearly describe
28 how the project will achieve the purpose defined in
29 paragraph (b).
30 (3) The ability of the proposal to reach an
31 underserved population.
32 (4) The ability of the proposal to demonstrate
33 community commitment to the project, as evidenced by
34 letters of support and cooperation.
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1 (5) The ability of the proposal to clearly describe
2 the process for recruiting, training, and retraining
3 volunteers.
4 (6) The inclusion in the proposal of the plan to
5 promote the project in the community, including outreach
6 to persons needing the services.
7 (e) Funds for all projects under this Section may be
8 used to do any of the following:
9 (1) Hire a coordinator to develop a coordinated
10 network of volunteer and paid respite care services and
11 assign workers to clients.
12 (2) Recruit and train volunteer providers.
13 (3) Train caregivers.
14 (4) Ensure the development of support groups for
15 caregivers.
16 (5) Advertise the availability of the caregiver
17 support respite care project.
18 (6) Purchase equipment to maintain a system of
19 assigning workers to clients.
20 (f) Project funds may not be used to supplant existing
21 funding sources.
22 Section 10-30. SAIL evaluation and expansion. The
23 Director of Aging shall evaluate the success of the SAIL
24 projects against the goals and objective stated in Section
25 10-5 and recommend to the legislature the continuation or
26 expansion of the long-term care strategy by February 15,
27 2000.
28 Section 10-35. Public awareness campaign. The Director
29 of Aging, with assistance from the Directors of Public
30 Health, Insurance, and Public Aid, and the Secretary of Human
31 Services, and with the advice of the long-term care planning
32 committee established under Article V, shall contract for a
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1 public awareness campaign to educate the general public,
2 seniors, consumers, caregivers, and professionals about the
3 aging process, the long-term care system, and alternatives
4 available, including alternative care and residential
5 alternatives. Particular emphasis will be given to informing
6 consumers on how to access the alternatives and obtain
7 information on the long-term care system. The Director of
8 Aging shall pursue the development of new names for
9 preadmission screening, alternative care, foster care, and
10 other services as deemed necessary for the public awareness
11 campaign.