State of Illinois
90th General Assembly
Legislation

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90_HB3272

      New Act
          Creates the Managed Care Enrollee Rights Act.  Sets forth
      specific rights of an enrollee with respect to the enrollee's
      relationship with a managed care entity.  The rights  include
      a  right  to  privacy,  the  right  to  care  consistent with
      professional standards of  care,  and  the  right  to  refuse
      treatment.    Establishes  the Managed Care Ombudsman Program
      within the Department of Public  Health.   Provides  for  the
      ombudsman  to  assist  consumers  in selecting an appropriate
      managed  care  plan  and  understanding  their   rights   and
      responsibilities  as  enrollees.   Requires the Department of
      Public Health to conduct an annual  consumer  survey  and  to
      publish  a  Consumer  Guidebook  of  Health Plan Performance.
      Requires managed care plans to establish Health Care  Service
      Delivery  Review  Boards  to establish rules of operation for
      the managed care plan.  Defines terms.
                                                     LRB9011500JSks
                                               LRB9011500JSks
 1        AN ACT concerning the provision of health care services.
 2        Be it enacted by the People of  the  State  of  Illinois,
 3    represented in the General Assembly:
 4        Section  1.  Short  title.   This Act may be cited as the
 5    Managed Care Enrollee Rights Act.
 6        Section 5. Definitions. For purposes  of  this  Act,  the
 7    following  words  shall  have  the  meanings provided in this
 8    Section, unless otherwise indicated:
 9        "Department" means the Department of Public Health.
10        "Director" means the Director of Public Health.
11        "Emergency medical screening examination" means a medical
12    screening examination and evaluation by a  physician  or,  to
13    the extent permitted by applicable laws, by other appropriate
14    personnel  under  the supervision of a physician to determine
15    whether the need for emergency  services exists.
16        "Emergency services" means the provision of  health  care
17    services  for  sudden and, at the time, unexpected onset of a
18    health condition that  would  lead  a  prudent  layperson  to
19    believe  that  failure to receive immediate medical attention
20    would result in serious  impairment  to  bodily  function  or
21    serious  dysfunction of any body organ or part or would place
22    the person's health in serious jeopardy.
23        "Enrollee" means a person  enrolled  in  a  managed  care
24    plan.
25        "Health  care provider" means a health care professional,
26    hospital, facility, or other person appropriately licensed or
27    otherwise authorized  to  furnish  health  care  services  or
28    arrange  for  the  delivery  of  health care services in this
29    State.
30        "Health care services" means services included in the (i)
31    furnishing of medical care, (ii) hospitalization incident  to
                            -2-                LRB9011500JSks
 1    the  furnishing  of  medical  care,  and  (iii) furnishing of
 2    services,  including  pharmaceuticals,  for  the  purpose  of
 3    preventing, alleviating, curing, or healing human illness  or
 4    injury to an individual.
 5        "Managed  care  plan"  means  a  plan  that  establishes,
 6    operates,  or  maintains  a  network of health care providers
 7    that have entered into agreements with the  plan  to  provide
 8    health  care  services  to  enrollees  where the plan has the
 9    obligation to the enrollee to arrange for the provision of or
10    pay for services through:
11             (1)  organizational arrangements for ongoing quality
12        assurance,  utilization  review  programs,   or   dispute
13        resolution; or
14             (2)  financial  incentives  for  persons enrolled in
15        the  plan  to  use  the   participating   providers   and
16        procedures covered by the plan.
17        A managed care plan may be established or operated by any
18    entity  including, but not necessarily limited to, a licensed
19    insurance company, hospital or medical service  plan,  health
20    maintenance     organization,    limited    health    service
21    organization, preferred provider  organization,  third  party
22    administrator,  independent practice association, or employer
23    or employee organization.
24        For purposes of  this  definition,  "managed  care  plan"
25    shall not include the following:
26             (1)  strict  indemnity  health insurance policies or
27        plans issued by an insurer that does not require approval
28        of a primary care provider or other  similar  coordinator
29        to access health care services; and
30             (2)  managed  care  plans  that offer only dental or
31        vision coverage.
32        "Specialist"  means  a  health  care   professional   who
33    concentrates  practice  in  a  recognized  specialty field of
34    care.
                            -3-                LRB9011500JSks
 1        "Speciality care center" means  only  a  center  that  is
 2    accredited by an agency of the State or federal government or
 3    by a voluntary national health organization as having special
 4    expertise   in   treating  the  life-threatening  disease  or
 5    condition or degenerative or disabling disease  or  condition
 6    for which it is accredited.
 7        "Utilization   review"  means the review, undertaken by a
 8    entity other than the managed care plan itself, to  determine
 9    whether health care services that  have  been  provided,  are
10    being   provided   or  are proposed  to  be  provided  to  an
11    individual by a managed care plan, whether  undertaken  prior
12    to,  concurrent  with,  or  subsequent  to  the  delivery  of
13    such  services  are medically  necessary.  For  the  purposes
14    of  this  Act, none of  the  following  shall  be  considered
15    utilization review:
16             (1)  denials based on failure to obtain health  care
17        services   from  a designated  or  approved  health  care
18        provider  as  required  under  an enrollee's contract;
19             (2)  the  review  of  the  appropriateness  of   the
20        application   of   a  particular  coding  to  a  patient,
21        including  the  assignment  of  diagnosis  and procedure;
22             (3)  any  issues relating to  the  determination  of
23        the amount or extent of payment other than determinations
24        to deny payment based on an adverse determination; and
25             (4)  any  determination of any coverage issues other
26        than whether health care services are or  were  medically
27        necessary.
28        "Utilization    review    agent"   means   any   company,
29    organization, or other entity performing utilization  review,
30    except:
31             (1)  an agency of the State or federal government;
32             (2)  an  agent  acting  on  behalf  of  the  federal
33        government,  but  only  to the  extent  that the agent is
34        providing services to the federal government;
                            -4-                LRB9011500JSks
 1             (3)  an agent acting on  behalf  of  the  State  and
 2        local   government   for  services  provided  pursuant to
 3        Title XIX of the federal Social Security Act, but only to
 4        the extent that the agent is providing  services  to  the
 5        State or local government;
 6             (4)  a hospital's internal quality assurance program
 7        except  if   associated  with  a  health  care  financing
 8        mechanism.
 9        Section  10.   Annual  consumer satisfaction survey.  The
10    Director shall develop and administer a survey of persons who
11    have been enrolled in a managed care plan in the most  recent
12    calendar   year  to  collect  information  on  relative  plan
13    performance.  This survey shall:
14             (1)  be administered annually by the Director, or by
15        an independent agency or  organization  selected  by  the
16        Director;
17             (2)  be  administered  to  a scientifically selected
18        representative sample  of  current  enrollees  from  each
19        plan, as well as persons who have disenrolled from a plan
20        in the last calendar year; and
21             (3)  emphasize  the  collection  of information from
22        persons  who  have  used  the  managed  care  plan  to  a
23        significant degree, as defined by rule.
24        Selected data  from  the  annual  survey  shall  be  made
25    available  to  current and prospective enrollees as part of a
26    consumer guidebook of  health  plan  performance,  which  the
27    Department  shall  develop  and  publish.  The elements to be
28    included in the guidebook shall be reassessed on  an  ongoing
29    basis  by  the  Department.   The consumer guidebook shall be
30    updated at least annually.
31        Section 15.  Managed care patient rights.  In addition to
32    all other requirements of this Act, a managed care plan shall
                            -5-                LRB9011500JSks
 1    ensure that an enrollee has the following rights:
 2        (1)  A patient has the  right  to  care  consistent  with
 3    professional  standards of practice to assure quality nursing
 4    and medical practices, to be informed  of  the  name  of  the
 5    participating  physician  responsible for coordinating his or
 6    her care,  to  receive  information  concerning  his  or  her
 7    condition  and proposed treatment, to refuse any treatment to
 8    the  extent  permitted   by   law,   and   to   privacy   and
 9    confidentiality  of  records  except as otherwise provided by
10    law.
11        (2)  A patient has the right,  regardless  of  source  of
12    payment,  to  examine and to receive a reasonable explanation
13    of his or her total bill for health care services rendered by
14    his or her physician or other health care provider, including
15    the  itemized  charges  for  specific  health  care  services
16    received.  A physician or other health care provider shall be
17    responsible  only  for  a  reasonable  explanation  of  these
18    specific health care services provided  by  the  health  care
19    provider.
20        (3)  A   patient   has   the   right   to   privacy   and
21    confidentiality  in  health  care.  A physician, other health
22    care provider, managed  care  plan,  and  utilization  review
23    agent  shall refrain from disclosing the nature or details of
24    health care services provided to patients,  except  that  the
25    information may be disclosed to the patient, the party making
26    treatment  decisions  if  the  patient is incapable of making
27    decisions regarding the health care services provided,  those
28    parties  directly  involved  with  providing treatment to the
29    patient or processing the payment for  the  treatment,  those
30    parties  responsible for peer review, utilization review, and
31    quality assurance, and those parties required to be  notified
32    under  the  Abused  and  Neglected  Child  Reporting Act, the
33    Illinois Sexually Transmissible Disease Control Act, or where
34    otherwise authorized or required by law.  This right  may  be
                            -6-                LRB9011500JSks
 1    expressly  waived  in writing by the patient or the patient's
 2    guardian, but a managed care  plan,  a  physician,  or  other
 3    health  care  provider  may  not  condition  the provision of
 4    health care services on the patient's or guardian's agreement
 5    to sign the waiver.
 6        Section 20.  Managed Care Ombudsman Program.
 7        (a)  The  Department  shall  establish  a  Managed   Care
 8    Ombudsman  Program  (MCOP).    The  purpose of the MCOP is to
 9    assist consumers to:
10             (1)  navigate the managed care system;
11             (2)  select an appropriate managed care plan; and
12             (3)  understand  and   assert   their   rights   and
13        responsibilities as managed care plan enrollees.
14        (b)  The  Department  shall  contract with an independent
15    organization or organizations to perform the  following  MCOP
16    functions:
17             (1)  Assist   consumers   with   managed  care  plan
18        selection  by  providing   information,   referral,   and
19        assistance to individuals about means of obtaining health
20        coverage and services, including, but not limited to:
21                  (A)  access   through   a  toll-free  telephone
22             number; and
23                  (B)  availability of information  in  languages
24             other  than  English  that  are  spoken as a primary
25             language by a significant  portion  of  the  State's
26             population, as determined by the Department.
27             (2)  Educate  and  train consumers in the use of the
28        Department's annual Consumer  Guidebook  of  Health  Plan
29        Performance, compiled in accordance with Section 10.
30             (3)  Analyze, comment on, monitor, and make publicly
31        available  reports  on the development and implementation
32        of federal, State and local laws, regulations, and  other
33        governmental  policies  and  actions  that pertain to the
                            -7-                LRB9011500JSks
 1        adequacy of managed care plans, facilities, and  services
 2        in the State.
 3             (4)  Ensure  that  individuals have timely access to
 4        the services provided through the MCOP.
 5             (5)  Submit an annual report to the  Department  and
 6        General Assembly:
 7                  (A)  describing  the  activities carried out by
 8             the MCOP  in  the  year  for  which  the  report  is
 9             prepared;
10                  (B)  containing    and   analyzing   the   data
11             collected by the MCOP; and
12                  (C)  evaluating  the  problems  experienced  by
13             managed care plan enrollees.
14             (6)  Exercise such other powers and functions as the
15        Department determines to be appropriate.
16        (c)  The  Department   shall   establish   criteria   for
17    selection  of an independent organization or organizations to
18    perform the functions of the MCOP, including, but not limited
19    to, the following:
20             (1)  Preference   shall   be   given   to   private,
21        not-for-profit  organizations  governed  by  boards  with
22        consumer members in the majority that represent  a  broad
23        spectrum of the diverse consumer interests in the State.
24             (2)  No individual or organization under contract to
25        perform functions of the MCOP may:
26                  (A)  have   a   direct   involvement   in   the
27             licensing,  certification,  or  accreditation  of  a
28             health  care  facility,  a  managed  care plan, or a
29             provider of a managed care plan, or  have  a  direct
30             involvement   with  a  provider  of  a  health  care
31             service;
32                  (B)  have  a  direct  ownership  or  investment
33             interest in a health care facility, a  managed  care
34             plan, or a health care service;
                            -8-                LRB9011500JSks
 1                  (C)  be  employed  by,  or  participate  in the
 2             management of, a health care service or facility  or
 3             a managed care plan; or
 4                  (D)  receive,  or  have  the  right to receive,
 5             directly or indirectly, remuneration (in cash or  in
 6             kind) under a compensation arrangement with an owner
 7             or  operator of a health care service or facility or
 8             managed care plan.
 9        The Department shall contract  with  an  organization  or
10    organizations qualified under criteria established under this
11    Section for an initial term of 3 years.  The initial contract
12    shall  be  renewable  thereafter  for additional 3 year terms
13    without reopening the competitive  selection  process  unless
14    there  has been an unfavorable written performance evaluation
15    conducted by the Department.
16        (d)  The Department shall establish,  by  rule,  policies
17    and procedures for the operation of MCOP sufficient to ensure
18    that  the  MCOP  can  perform all functions specified in this
19    Section.
20        (e)  The Department shall provide  adequate  funding  for
21    the  MCOP by assessing each managed care plan an amount to be
22    determined by the Department.
23        (f)  Nothing in this  Section  shall  be  interpreted  to
24    authorize  access  to  or disclosure of individual patient or
25    provider records.
26        Section 25.  Waiver.   Any  agreement  that  purports  to
27    waive,  limit, disclaim or in any way diminish the rights set
28    forth in  this Act is void as contrary to public policy.
29        Section 30.  Administration of Act.
30        (a)  The Department shall administer the Act.
31        (b)  All managed care plans and utilization review agents
32    providing or reviewing services in  Illinois  shall  annually
                            -9-                LRB9011500JSks
 1    certify compliance with this Act and rules adopted under this
 2    Act  to  the  Department  in  addition to any other licensure
 3    required by law.  The Director  shall  establish  by  rule  a
 4    process  for  this  certification including fees to cover the
 5    costs associated with implementing this Act.   All  fees  and
 6    fines  assessed  under  this  Act  shall  be deposited in the
 7    Managed Care Reform Fund, a special fund  hereby  created  in
 8    the  State treasury.  Moneys in the Fund shall be used by the
 9    Department only to enforce  and  administer  this  Act.   The
10    certification  requirements of this Act shall be incorporated
11    into program requirements of the Department of Public Aid and
12    Department of Human Services  and  no  further  certification
13    under this Act is required.
14        (c)  The  Director  shall  take  enforcement action under
15    this Act including, but not limited  to,  the  assessment  of
16    civil  fines  and injunctive relief for any failure to comply
17    with this Act or any violation of this  Act  or  rules  by  a
18    managed care plan or any utilization review agent.
19        (d)  The  Department  shall  have the authority to impose
20    fines on any managed care  plan  or  any  utilization  review
21    agent.  The Department shall adopt rules pursuant to this Act
22    that  establish  a  system  of  fines related to the type and
23    level of violation or repeat  violation,  including  but  not
24    limited to:
25             (1)  A  fine  not  exceeding $10,000 for a violation
26        that created  a  condition  or  occurrence  presenting  a
27        substantial  probability that death or serious harm to an
28        individual will or did result therefrom; and
29             (2)  A fine not exceeding  $5,000  for  a  violation
30        that  creates  or  created a condition or occurrence that
31        threatens  the  health,  safety,   or   welfare   of   an
32        individual.
33        Each   day  a  violation  continues  shall  constitute  a
34    separate offense.  These rules shall include  an  opportunity
                            -10-               LRB9011500JSks
 1    for  a hearing in accordance with the Illinois Administrative
 2    Procedure Act.  All final decisions of the  Department  shall
 3    be reviewable under the Administrative Review Law.
 4        (e)  Notwithstanding  the  existence  or  pursuit  of any
 5    other remedy, the Director may, through the Attorney General,
 6    seek an injunction to  restrain  or  prevent  any  person  or
 7    entity from functioning or operating in violation of this Act
 8    or rule.
 9        Section 35.  Health Care Service Delivery Review Board.
10        (a)  A  managed  care  plan  shall organize a Health Care
11    Service Delivery Review Board from participants in the  plan.
12    The  Board  shall  consist  of  17  members:  5 participating
13    physicians  elected  by  participating  physicians,  5  other
14    participating providers elected  by  the  other  health  care
15    providers,  5  enrollees  elected  by  the  enrollees,  and 2
16    representatives of the  plan  appointed  by  the  plan.   The
17    representatives  of  the  plan  shall  not have a vote on the
18    Board, but shall have  all  other  rights  granted  to  Board
19    members.   The plan shall devise a mechanism for the election
20    of the Board's  members,  subject  to  the  approval  of  the
21    Department.   The  Department shall not unreasonably withhold
22    its approval of a mechanism.
23        (b)  The  Health  Care  Service  Delivery   Board   shall
24    establish   written   rules  and  regulations  governing  its
25    operation.  The managed care plan shall  approve  the  rules,
26    but  may  not  unilaterally  amend  them.   A  plan  may  not
27    unreasonably   withhold   approval   of  proposed  rules  and
28    regulations.
29        (c)  The Health Care Service Delivery Board  shall,  from
30    time to time, issue nonbinding reports and reviews concerning
31    the  plan's  health  care  delivery policy, quality assurance
32    procedures, utilization review criteria and  procedures,  and
33    medical  management  procedures.   The Board shall select the
                            -11-               LRB9011500JSks
 1    aspects of the plan that it wishes to study or review and may
 2    undertake a study or review at the request of the plan.   The
 3    Board  shall  issue  its  report directly to the managed care
 4    plan's governing board.

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