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| | HR1099 | | LRB098 21271 MST 59382 r |
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1 | | HOUSE RESOLUTION
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2 | | WHEREAS, Rett syndrome is a unique postnatal neurological |
3 | | disorder that is first recognized in infancy and seen almost |
4 | | always in girls, but can be seen in boys; it strikes all racial |
5 | | and ethnic groups, and occurs worldwide in one of every 10,000 |
6 | | to 23,000 female births; it causes problems in brain functions |
7 | | that are responsible for cognitive, sensory, emotional, motor |
8 | | and autonomic function; these can include learning, speech, |
9 | | sensory sensations, mood, movement, breathing, cardiac |
10 | | function, and even chewing, swallowing, and digestion; and
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11 | | WHEREAS, Girl Power 2 Cure, Inc. is a 501c3 nonprofit |
12 | | organization dedicated to raising awareness and funds for |
13 | | treatments and a cure for Rett Syndrome and is committed to |
14 | | making Rett Syndrome the first reversible neurological |
15 | | disorder by harnessing the spirit of girls to support fellow |
16 | | girls who are suffering; the organization supports girls in the |
17 | | planning and implementation of events that raise awareness and |
18 | | funds for Rett Syndrome research, as well as support Rett |
19 | | families with resources, fundraising help, and awareness |
20 | | tools; its inspiration is its flower: "always in bloom with |
21 | | hope and positive energy, ready to grow anywhere there is |
22 | | someone ready to join in our mission"; and
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23 | | WHEREAS, Girl Power 2 Cure, Inc. will hold a fundraiser for |