104TH GENERAL ASSEMBLY
State of Illinois
2025 and 2026
SB2273

 

Introduced 2/7/2025, by Sen. Celina Villanueva

 

SYNOPSIS AS INTRODUCED:
 
New Act
815 ILCS 505/2HHHH new

    Creates the Protect Health Data Privacy Act. Provides that a regulated entity shall disclose and maintain a health data privacy policy that clearly and conspicuously discloses specified information. Sets forth provisions concerning health data privacy policies. Provides that a regulated entity shall not collect, share, or store health data, except in specified circumstances. Provides that it is unlawful for any person to sell or offer to sell health data concerning an individual without first obtaining valid authorization from the individual. Provides that a valid authorization to sell individual health data must contain specified information; a copy of the signed valid authorization must be provided to the individual; and the seller and purchaser of health data must retain a copy of all valid authorizations for sale of health data for 6 years after the date of its signature or the date when it was last in effect, whichever is later. Sets forth provisions concerning the consent required for collection, sharing, and storage of health data. Provides that an individual has the right to withdraw consent from the processing of the individual's health data. Provides that it is unlawful for a regulated entity to engage in discriminatory practices against individuals solely because they have not provided consent to the processing of their health data or have exercised any other rights provided by the provisions or guaranteed by law. Sets forth provisions concerning an individual's right to confirm whether a regulated entity is collecting, selling, sharing, or storing any of the individual's health data; an individual's right to have the individual's health data that is collected by a regulated entity deleted; prohibitions regarding geofencing; and individual health data security. Provides that any person aggrieved by a violation of the provisions shall have a right of action in a State circuit court or as a supplemental claim in federal district court against an offending party. Provides that the Attorney General may enforce a violation of the provisions as an unlawful practice under the Consumer Fraud and Deceptive Business Practices Act. Defines terms. Makes a conforming change in the Consumer Fraud and Deceptive Business Practices Act.


LRB104 11880 BAB 21971 b

 

 

A BILL FOR

 

SB2273LRB104 11880 BAB 21971 b

1    AN ACT concerning regulation.
 
2    Be it enacted by the People of the State of Illinois,
3represented in the General Assembly:
 
4    Section 1. Short title. This Act may be cited as the
5Protect Health Data Privacy Act.
 
6    Section 5. Definitions. As used in this Act:
7    "Affiliate" means a legal entity that shares common
8branding with another legal entity or controls, is controlled
9by or is under common control with another legal entity. For
10the purposes of this definition, "control" and "controlled"
11mean (A) ownership of, or the power to vote, more than 50% of
12the outstanding shares of any class of voting security of a
13company, (B) control in any manner over the election of a
14majority of the directors or of individuals exercising similar
15functions, or (C) the power to exercise controlling influence
16over the management of a company.
17    "Collect" means to buy, rent, lease, access, retain,
18receive, or acquire health data in any manner.
19    "Consent" means a clear affirmative act by an individual
20that unambiguously communicates the individual's express,
21freely given, informed, opt-in, voluntary, specific, and
22unambiguous written agreement, including written consent
23provided by electronic means, to the processing of health

 

 

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1data. Consent may not be implied, and consent cannot be
2obtained by:
3        (1) acceptance of a general or broad terms of use
4    agreement or a similar document that contains descriptions
5    of personal data processing along with other, unrelated
6    information;
7        (2) hovering over, muting, pausing, or closing a given
8    piece of digital content; or
9        (3) agreement obtained through the use of deceptive
10    designs.
11    "Deceptive design" means any user interface or element
12thereof that has the substantial effect of subverting,
13impairing, or impeding an individual's autonomy,
14decision-making, or choice.
15    "Deidentified data" means data that cannot be used to
16infer information about, or otherwise be linked to, an
17identified or identifiable individual, or a device linked to
18such individual. A regulated entity that possesses
19deidentified data shall: (i) take reasonable measures to
20ensure that such data cannot be associated with an individual;
21(ii) publicly commit to process such data only in a
22deidentified fashion and not attempt to reidentify such data;
23and (iii) contractually obligate any recipients of such data
24to satisfy the criteria set forth in items (i) and (ii).
25    "Geofence" means technology that uses global positioning
26coordinates, cell tower connectivity, cellular data, radio

 

 

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1frequency identification, wireless Internet data, or any other
2form of spatial or location detection to establish a virtual
3boundary around a specific physical location, or to locate an
4individual within a virtual boundary. For the purposes of this
5Act, "geofence" means a virtual boundary that is no more than
61,750 feet around a specific physical location.
7    "Health data" means information regarding, relating to,
8derived, or extrapolated from the past, present, or future
9physical or mental health of an individual, including, but not
10limited to, any information relating to:
11        (1) individual health conditions, treatment, status,
12    diseases, or diagnoses;
13        (2) health related surgeries or procedures;
14        (3) use or purchase of medication;
15        (4) social, psychological, behavioral, and medical
16    interventions;
17        (5) bodily functions, vital signs, measurements, or
18    symptoms;
19        (6) diagnoses or diagnostic testing, treatment, or
20    medication;
21        (7) efforts to research or obtain health services or
22    supplies;
23        (8) health services or products that support or relate
24    to lawful health care, as defined by Public Act 102-1117;
25        (9) precise location information that could reasonably
26    be used to determine an individual's attempt to acquire or

 

 

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1    receive health services or supplies; and
2        (10) any information described in paragraphs (1)
3    through (9) that is derived or extrapolated from
4    non-health information, including by use of algorithms or
5    machine learning, if such information is used or processed
6    in connection with the advertising, marketing, or
7    provision of health services.
8    "Health data" does not include:
9        (1) personal information collected with the
10    individual's consent that is used in research conducted in
11    accordance with the Federal Policy for the Protection of
12    Human Subjects, also known as the Common Rule, at Part 46
13    of Title 45 of the Code of Federal Regulations; the Good
14    Clinical Practice Guidelines issued by the International
15    Council for Harmonisation of Technical Requirements for
16    Pharmaceuticals for Human Use; or the United States Food
17    and Drug Administration human subjects protection
18    requirements under Parts 50 and 56 of Title 21 of the Code
19    of Federal Regulations and that adheres to all other
20    applicable ethics and privacy laws and is approved,
21    monitored, and governed by an institutional review board,
22    human subjects research ethics review board, or a similar
23    independent oversight entity that determines that the
24    regulated entity has implemented reasonable safeguards to
25    mitigate privacy risks associated with research, including
26    any risks associated with reidentification; or

 

 

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1        (2) deidentified data.
2    "Health services" means any service, medical care, or
3information related to an individual's health data provided to
4an individual.
5    "HIPAA" means the Health Insurance Portability and
6Accountability Act of 1996, Public Law 104-191, the Health
7Information Technology for Economic and Clinical Health Act,
8and any subsequent amendments thereto and any regulations
9promulgated thereunder, including the Privacy Rule, as
10specified in 45 CFR 164.500-534, the Security Rule, as
11specified in 45 CFR 164.302-318, and the Breach Notification
12rule, as specified in 45 CFR 164.400-414.
13    "Homepage" means the introductory page of a website where
14personal information is collected. In the case of an online
15service, such as a mobile application, "homepage" means the
16application's platform page or download page, such as from the
17application configuration, "About" page, "Information" page,
18or settings page, and any other location that allows
19individuals to review the notice.
20    "Individual" means a person who is a resident of this
21State, however identified, including by any unique identifier.
22A person located in this State when the person's health data is
23collected by a regulated entity shall create a presumption
24that the person is a resident of this State for purposes of
25enforcing this Act. "Individual" does not include a person
26acting in a commercial or within an employment context.

 

 

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1    "Personal information" means information that identifies,
2relates to, describes, is reasonably capable of being
3associated with, or linked, directly or indirectly, with a
4particular individual or household. "Personal information"
5does not include publicly available information or
6deidentified data.
7    "Precise location information" means information that
8identifies the location of an individual within a radius of
91,750 feet. "Precise location information" does not include:
10(i) the content of communications, or (ii) any data generated
11by or connected to advanced utility metering infrastructure
12systems or equipment for use by a utility.
13    "Process" or "Processing" means any operation or set of
14operations performed, whether by manual or automated means, on
15personal information or on sets of personal information,
16whether alone or in combination with other data, such as the
17collection, use, access, sharing, sale, monetization,
18analysis, retention, creation, generation, derivation,
19recording, organization, structuring, storage, disclosure,
20transmission, disposal, licensing, destruction, deletion,
21retrieval, modification, or deidentification of health data.
22    "Processor" means a person or legal entity that processes
23health data on behalf of a regulated entity pursuant to a
24written agreement or contract.
25    "Publicly available" means information that is lawfully
26made available from federal, State, or local government

 

 

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1records.
2    "Regulated entity" means any individual, partnership,
3corporation, limited liability company, association, or other
4group, however organized, that: (i) conducts business in this
5State or produces products or services that are available to
6individuals in this State; and (ii) for any purpose, processes
7or otherwise deals with health data. "Regulated entity" does
8not include government agencies, including the Illinois
9Insurance Guaranty Fund as described under Article XXXIV of
10the Illinois Insurance Code, tribal nations, a clerk of the
11court, or a judge or justice thereof, or contracted service
12providers or processors when processing an individual's health
13data on behalf of the governmental agency. "Regulated entity"
14does not include any entity that is a covered entity or a
15business associate, as defined in Section 160.103 of Title 45
16of the Code of Federal Regulations, subject to and in
17substantial compliance with HIPAA to the extent such entity is
18acting as a covered entity or business associate under the
19Privacy and Security rules issued by the United States
20Department of Health and Human Services, Parts 160 and 164 of
21Title 45 of the Code of Federal Regulations. "Regulated
22entity" does not include any entity that is subject to and in
23compliance with restrictions on disclosure of records under
24Section 543 of the Public Health Service Act, 42 U.S.C.
25290dd–2, to the extent such entity is acting in a capacity
26subject to such restrictions.

 

 

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1    "Sell" or "sale" means when a regulated entity, directly
2or indirectly, receives any form of remuneration or other
3valuable consideration from the use of health data or from the
4recipient of the health data in exchange for the health data.
5"Sell" or "sale" does not include:
6        (1) the sharing of health data to a recipient where
7    the regulated entity maintains control and ownership of
8    the health data;
9        (2) the sharing of health data to comply with
10    applicable laws or regulations;
11        (3) the use of the health data by an entity
12    exclusively at the direction of the regulated entity and
13    consistent with the purpose for which it was collected and
14    disclosed; and
15        (4) the transfer of health data to a third party as an
16    asset as part of a merger, acquisition, bankruptcy, or
17    other transaction in which the third party assumes control
18    of all or part of the regulated entity's assets that shall
19    comply with the requirements and obligations in this Act.
20    "Share" or "sharing" means to release, disclose,
21disseminate, divulge, loan, make available, provide access to,
22license, or otherwise communicate orally, in writing, or by
23electronic or other means, health data by a regulated entity
24to a third party except where the regulated entity maintains
25exclusive control and ownership of the health data. "Share" or
26"sharing" does not include:

 

 

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1        (1) the disclosure or transfer of health data to a
2    processor that collects or processes the personal data on
3    behalf of the regulated entity, when the regulated entity
4    maintains control and ownership of the data and the
5    processor maintains or uses the health data only for the
6    regulated entity's distinct purposes pursuant to a
7    contract;
8        (2) the disclosure or transfer of health data to a
9    third party with whom the individual has a direct
10    relationship for purposes of and only to the extent
11    necessary for providing a product or service requested by
12    the individual when the regulated entity maintains control
13    and ownership of the data and the third party maintains or
14    uses the health data only for the regulated entity's
15    distinct purposes; or
16        (3) the disclosure or transfer of personal data to a
17    third party as an asset that is part of a merger,
18    acquisition, bankruptcy, or other transaction in which the
19    third party assumes control of all or part of the
20    regulated entity's assets and shall comply with the
21    requirements and obligations in this Act.
22    "Strictly necessary" means essential or required to be
23done.
24    "Substantial compliance" means a level of compliance with
25Title 45 of the Code of Federal Regulations Sections 164.502,
26164.508, 164.510, 164.512, 164.514, 164.520, 164.522, 164.524,

 

 

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1164.526, 164.528, and 164.530 that does not arise from gross
2negligence, recklessness, or willful misconduct by the entity
3acting as a covered entity or business associate.
4    "Third party" means an entity other than an individual,
5regulated entity, service provider, or affiliate of the
6regulated entity.
 
7    Section 10. Scope.
8    (a) This Act applies to individuals seeking, researching,
9or obtaining health services within this State, or information
10about health services available in this State and regulated
11entities.
12    (b) This Act does not affect an individual's right to
13voluntarily share the individual's own health information with
14another person or entity.
 
15    Section 15. Health data privacy policy required.
16    (a) A regulated entity shall disclose and maintain a
17health data privacy policy that, in plain language, clearly
18and conspicuously includes and discloses:
19        (1) the specific types of health data collected and
20    the purpose for which the data is collected and used;
21        (2) the categories of sources from which the health
22    data is collected;
23        (3) whether the regulated entity collects health data
24    when the individual is not directly interacting with the

 

 

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1    regulated entity or its services.
2        (4) the specific types of health data that are shared
3    and sold;
4        (5) the categories of third parties with whom the
5    regulated entity sells and processes health data, and the
6    process to withdraw consent from having health data
7    processed and sold;
8        (6) a list of the third parties with whom the
9    regulated entity shares health data;
10        (7) the length of time the regulated entity intends to
11    retain each category of health data, or if that is not
12    possible, the criteria used to determine that period;
13    however, a regulated entity shall not retain health data
14    for each disclosed purpose for which the health data was
15    collected for longer than is reasonably necessary to
16    fulfill that disclosed purpose or as otherwise permitted
17    by this Act;
18        (8) how an individual may exercise the rights provided
19    in this Act, including, but not limited to, identifying 2
20    or more designated methods for an individual to contact
21    the regulated entity in connection with the exercise of
22    any rights provided in this Act;
23        (9) the process to opt out of having health data
24    collected; and
25        (10) an active electronic mail address or other online
26    mechanism that the individual may use to contact the

 

 

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1    regulated entities free of charge.
2    (b) A regulated entity shall prominently publish or link
3to its health data privacy policy on its website homepage,
4mobile application, or in another manner that is clear and
5conspicuous to individuals. Its health data privacy policy
6must be distinguishable from other matters. Any regulated
7entity providing health services in a physical location shall
8also post its health data privacy policy in a conspicuous
9place that is readily available for viewing by individuals.
10    (c) A regulated entity shall not process or sell
11additional categories of health data not disclosed in the
12health data privacy policy without first disclosing the
13additional categories of health data and obtaining the
14individual's consent before the processing or selling of the
15health data.
16    (d) A regulated entity shall not process or sell health
17data for additional purposes not disclosed in the health data
18privacy policy without first disclosing the additional
19purposes and obtaining the individual's consent before the
20processing or selling of the health data.
21    (e) It is a violation of this Act for a regulated entity to
22contract with a processor to process an individual's health
23data in a manner that is inconsistent with the regulated
24entity's health data privacy policy.
 
25    Section 20. Prohibition on processing of health data.

 

 

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1    (a) A regulated entity shall not process health data,
2except:
3        (1) with the consent of the individual to whom the
4    information relates for a specified purpose; or
5        (2) as is strictly necessary to provide a product or
6    service that the individual to whom the health data
7    relates has specifically requested from the regulated
8    entity.
9    (b) Consent required under this Section must be obtained
10before the use of any health data for any additional purpose
11that was not specified before obtaining an individual's
12consent for the use of the health data.
 
13    Section 25. Prohibition on sale of health data.
14    (a) It is unlawful for any person to sell or offer to sell
15health data concerning an individual without first obtaining
16valid authorization from the individual. The sale of
17individual health data must be consistent with the valid
18authorization signed by the individual.
19    (b) A valid authorization to sell an individual's health
20data is an agreement consistent with this Section and must be
21written in plain language. The valid authorization to sell the
22individual's health data must contain the following:
23        (1) the specific health data concerning the individual
24    that the person intends to sell;
25        (2) the name and contact information of any person or

 

 

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1    entity collecting and selling the health data;
2        (3) the name and contact information of any person or
3    entity purchasing the health data from the seller
4    identified in paragraph (2) of this subsection;
5        (4) a description of the purpose for the sale,
6    including how the health data will be gathered and how it
7    will be used by the purchaser identified in paragraph (3)
8    of this subsection when sold;
9        (5) a statement that the provision of goods or
10    services may not be conditioned on the individual signing
11    the valid authorization;
12        (6) a statement that the individual has a right to
13    revoke the valid authorization at any time and a
14    description on how an individual may revoke the valid
15    authorization;
16        (7) a statement that the individual health data sold
17    pursuant to the valid authorization may be subject to
18    redisclosure by the purchaser and may no longer be
19    protected by this Section;
20        (8) an expiration date for the valid authorization
21    that expires one year from when the individual signs the
22    valid authorization; and
23        (9) the signature of the individual and date.
24    (c) An authorization is not valid if the document has any
25of the following defects:
26        (1) the expiration date has passed;

 

 

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1        (2) the authorization does not contain all the
2    information required under this Section;
3        (3) the authorization has been revoked by the
4    individual;
5        (4) the authorization has been combined with other
6    documents to create a compound authorization; or
7        (5) the provision of goods or services is conditioned
8    on the individual signing the authorization.
9    (d) A copy of the signed valid authorization must be
10provided to the individual.
11    (e) The seller and purchaser of health data must retain a
12copy of all valid authorizations for sale of health data for 6
13years after the date of its signature or the date when it was
14last in effect, whichever is later.
 
15    Section 30. Consent required for processing health data.
16    (a) A regulated entity shall not seek consent to process
17health data without first disclosing its health data privacy
18policy as required under Section 15.
19    (b) Consent required under this Section must be obtained
20before the processing, as applicable, of any health data, and
21the request for consent must clearly and conspicuously
22disclose, separate and apart from its health data privacy
23policy:
24        (1) the categories of health data processed;
25        (2) the purpose of the processing of the health data,

 

 

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1    including the specific ways in which it will be used; and
2        (3) how the individual can withdraw consent from
3    future processing of their health data.
4    (c) Consent required under this Section must be obtained
5before the use of any health data for any additional purpose
6that was not specified before obtaining an individual's
7consent for the use of the health data.
8    (d) An individual may exercise rights under this Section
9by submitting a request to a regulated entity using the method
10the regulated entity specifies in the privacy policy under
11paragraph (8) of subsection (a) of Section 15.
 
12    Section 35. Right to withdraw consent. An individual has
13the right to withdraw consent from the sale or processing of
14the individual's health data, consistent with the requirements
15of Section 30.
 
16    Section 40. Prohibition on discriminatory practices.
17    (a) It is unlawful for a regulated entity to engage in
18discriminatory practices against an individual solely because
19the individual has not provided consent to the sale or
20processing of the individual's health data pursuant to this
21Act, or have exercised any other rights provided by this Act or
22guaranteed by law. Discriminatory practices include, but are
23not limited to:
24        (1) denying or limiting goods or services to the

 

 

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1    individual;
2        (2) imposing additional requirements or restrictions
3    on the individual that would not be necessary if the
4    individual provided consent;
5        (3) providing materially different treatment to
6    individuals who provide consent as compared to individuals
7    who do not provide consent;
8        (4) providing or suggesting that the individual will
9    receive a lower level or quality of goods or services;
10        (5) suggesting that the individual will receive a
11    different price or rate for goods or services; or
12        (6) charging different prices or rates for goods or
13    services, including using discounts or other benefits or
14    imposing penalties.
15    (b) It shall not be a discriminatory practice under this
16Section to use health data as is strictly necessary to provide
17a product or service that the individual to whom the health
18data relates has specifically requested from a regulated
19entity.
 
20    Section 45. Right to confirm.     (a) An individual has
21the right to confirm whether a regulated entity is collecting,
22selling, sharing, or storing any of the individual's health
23data, and to confirm that a regulated entity has deleted the
24individual's health data following a deletion request pursuant
25to Section 50.

 

 

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1    (b) A regulated entity that receives an individual's
2request to confirm shall respond within 45 calendar days after
3receiving the request to confirm from the individual.
4    (c) The regulated entity shall, without reasonable delay,
5promptly take all steps necessary to verify the individual's
6request, but this shall not extend the regulated entity's duty
7to respond within 45 days of receipt of the individual's
8request.
9    (d) The time period to provide the required confirmation
10may be extended once by an additional 45 calendar days when
11reasonably necessary, if the individual is provided notice of
12the extension within the first 45-day period.
 
13    Section 50. Right to deletion.
14    (a) An individual whose health data is collected by a
15regulated entity has the right to have the individual's health
16data that is collected by a regulated entity deleted by
17informing the regulated entity of the individual's request for
18deletion, except as provided in subsection (g).
19    (b) Except as otherwise specified in subsection (f), a
20regulated entity that receives an individual's request to
21delete any of the individual's health data shall without
22unreasonable delay, and no more than 45 calendar days from
23receiving the deletion request:
24        (1) delete the individual's health data from its
25    records, including from all parts of the regulated

 

 

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1    entity's network; and
2        (2) notify all service providers, contractors, and
3    third parties with whom the regulated entity has shared
4    the individual's health data of the deletion request.
5    (c) If a regulated entity stores any health data on
6archived or backup systems, it may delay compliance with the
7individual's request to delete with respect to the health data
8stored on the archived or backup system until the archived or
9backup system relating to that data is restored to an active
10system or is next accessed or used.
11    (d) Any processor, service provider, contractor, and other
12third party that receives notice of an individual's deletion
13request from a regulated entity shall honor the individual's
14deletion request and delete the health data from the regulated
15entity's records, including from all parts of its network or
16backup systems.
17    (e) An individual or an individual's authorized agent may
18exercise the rights set forth in this Act by submitting a
19request, at any time, to a regulated entity. Such a request may
20be made by:
21        (1) contacting the regulated entity through the manner
22    included in its health data privacy policy;
23        (2) by designating an authorized agent who may
24    exercise the rights on behalf of the individual;
25        (3) in the case of collecting health data of a minor,
26    the minor seeking health services may exercise their

 

 

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1    rights under this Act, or the parent or legal guardian of
2    the minor may exercise the rights of this Act on the
3    minor's behalf; or
4        (4) in the case of collecting health data concerning
5    an individual subject to guardianship, conservatorship, or
6    other protective arrangement under the Probate Act of
7    1975, the guardian or the conservator of the individual
8    may exercise the rights of this Act on the individual's
9    behalf.
10    (f) The time period to delete any of the individual's
11health data may be extended once by an additional 45 calendar
12days when reasonably necessary, if the individual is provided
13notice of the extension within the first 45-day period.
14    (g) Neither a regulated entity nor a processor shall be
15required to comply with an individual's request to delete the
16individual's health data if it is necessary for the regulated
17entity or the processor to maintain the individual's health
18data to:
19        (1) complete the transaction for which the health data
20    was collected, provide a good or service requested by the
21    individual, or otherwise fulfill the requirements of an
22    agreement between the regulated entity and the individual;
23        (2) prevent or detect security incidents, protect
24    against malicious, deceptive, fraudulent, or illegal
25    activity, if the use of health data for such purposes is
26    limited in time pursuant to a valid record retention

 

 

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1    schedule;
2        (3) engage in public or peer-reviewed scientific,
3    historical, or statistical research in the public interest
4    that adheres to all other applicable ethics and privacy
5    laws, if the entities' deletion of the information is
6    likely to render impossible or seriously impair the
7    achievement of such research, and if the individual has
8    provided consent to such use of their health data;
9        (4) comply with any applicable data retention
10    requirements in accordance with State and federal law,
11    including the data retention requirements set forth in
12    Section 6 of the Hospital Licensing Act, 45 CFR 164.316,
13    and 45 CFR 164.530; or
14        (5) retain the health data if the regulated entity has
15    been notified, in writing by an attorney, that there is
16    litigation pending in court involving the individual's
17    health data as possible evidence and that the individual
18    is the attorney's client or is the person who has
19    instituted the litigation against their client, then the
20    regulated entity shall retain the record of that
21    individual until notified in writing by the plaintiff's
22    attorney, with the approval of the defendant's attorney of
23    record, that the case in court involving the record has
24    been concluded or for a period of 12 years after the date
25    that the record was produced, whichever occurs first in
26    time.
 

 

 

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1    Section 55. Authentication of identity.
2    (a) A regulated entity that receives an individual's
3request to confirm or delete may take reasonable measures to
4authenticate the individual's identity or an authorized
5agent's identity to a reasonably high degree of certainty. A
6reasonably high degree of certainty may include matching at
7least 3 pieces of personal information provided by the
8individual or the individual's authorized agent with personal
9information maintained by the regulated entity that it has
10determined to be reliable for the purpose of authenticating
11the individual or the individual's authorized agent together
12with a signed declaration under penalty of perjury that the
13individual or the individual's authorized agent making the
14request is the individual or the individual's authorized agent
15whose health data is the subject of the request. If a regulated
16entity uses this method for authentication, the regulated
17entity shall make all forms necessary for authentication of an
18individual's or the individual's authorized agent's identity
19available to the individual or the individual's authorized
20agent, and shall maintain all signed declarations as part of
21its recordkeeping obligations.
22    (b) A regulated entity is not required to comply with an
23individual's or the individual's authorized agent's request to
24confirm or delete if the regulated entity, using commercially
25reasonable efforts, is unable to authenticate the identity of

 

 

SB2273- 23 -LRB104 11880 BAB 21971 b

1the individual or the individual's authorized agent making the
2request. If a regulated entity is unable to authenticate the
3individual's or the individual's authorized agent's identity,
4the regulated entity shall inform the individual or the
5individual's authorized agent that it was unable to
6authenticate the individual's or the individual's authorized
7agent's identity and advise the individual or the individual's
8authorized agent of other methods, if available, of
9authenticating their identity.
10    (c) If a regulated entity denies an authenticated
11individual's request to delete that individual's health data,
12in whole or in part, because of a conflict with federal or
13State law, the regulated entity shall inform the requesting
14individual and explain the basis for the denial, unless
15prohibited from doing so by law.
16    (d) Any information provided by an individual or the
17individual's authorized agent to a regulated entity for the
18purpose of authenticating the individual's or the individual's
19authorized agent's identity shall not be used for any purpose
20other than authenticating the individual's identity and shall
21be destroyed immediately following the authentication process.
 
22    Section 60. Individual health data security and
23minimization.
24    (a) A regulated entity shall restrict access to health
25data by the employees, processors, service providers, and

 

 

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1contractors of the regulated entity to only those employees,
2processors, services providers, and contractors for whom
3access is necessary to provide a product or service that the
4individuals to whom the health data relates have requested
5from the regulated entity.
6    (b) A regulated entity shall establish, implement, and
7maintain administrative, technical, and physical data security
8practices that at least satisfy a reasonable standard of care
9within the regulated entity's industry to protect the
10confidentiality, integrity, and accessibility of health data
11appropriate to the volume and nature of the personal data at
12issue.
 
13    Section 65. Prohibition on geofencing.
14    (a) It shall be unlawful for any person to implement a
15geofence that enables the sending of notifications, messages,
16alerts, advertisements, or other pieces of information to an
17individual that enters the perimeter around any entity that
18provides health services or products, unless such messages are
19directly related to an individual's appointment in the
20facility or the provision of requested health services or
21products by the regulated entity.
22    (b) It shall be unlawful for any person to implement a
23geofence around any entity that provides in-person health care
24services and products where the geofence is used to:
25        (1) identify or track individuals seeking health care

 

 

SB2273- 25 -LRB104 11880 BAB 21971 b

1    services or products or to determine whether the
2    individual is seeking health care services or products; or
3        (2) collect data from an individual who enters the
4    virtual perimeter.
 
5    Section 70. Limits on access to an individual's health
6information by government agencies, officials, and law
7enforcement.
8    (a) A regulated entity shall not disclose an individual's
9health data to a federal, state, or local governmental agency,
10official, or law enforcement agent or agency unless: (1)
11disclosure is requested by the individual to whom the health
12data pertains or (2) the governmental entity or official
13serves the regulated entity with a valid warrant, except as
14prohibited under the laws of this State, including, but not
15limited to, Section 3.5 of the Uniform Interstate Depositions
16and Discovery Act.
17    (b) A regulated entity shall not sell, share, allow access
18to, or disclose an individual's health data to any State or
19local jurisdiction for the purpose of investigating or
20enforcing a law that denies or interferes with an individual's
21right to obtain any lawful health care services, as defined by
22the Lawful Health Care Activity Act.
 
23    Section 75. Private right of action. Any person aggrieved
24by a violation of this Act shall have a right of action in a

 

 

SB2273- 26 -LRB104 11880 BAB 21971 b

1State circuit court or as a supplemental claim in federal
2district court against an offending party. A prevailing party
3may recover for each violation:
4        (1) against any offending party that negligently
5    violates a provision of this Act, liquidated damages of
6    $1,000 or actual damages, whichever is greater;
7        (2) against any offending party that intentionally or
8    recklessly violates a provision of this Act, liquidated
9    damages of $5,000 or actual damages, whichever is greater;
10        (3) reasonable attorney's fees and costs, including
11    expert witness fees and other litigation expenses; and
12        (4) other relief, including an injunction, as the
13    State or federal court may deem appropriate.
 
14    Section 80. Enforcement by the Attorney General. The
15Attorney General may enforce a violation of this Act as an
16unlawful practice under the Consumer Fraud and Deceptive
17Business Practices Act. All rights and remedies provided to
18the Attorney General under the Consumer Fraud and Deceptive
19Business Practices Act shall be available for enforcement of a
20violation of this Act.
 
21    Section 85. Conflict with other laws.
22    (a) Nothing in this Act shall be construed to prohibit the
23lawful and authorized disclosure of health data by regulated
24entities to local health departments or State government

 

 

SB2273- 27 -LRB104 11880 BAB 21971 b

1agencies or by or among local health departments and State
2government agencies as may be required by State and federal
3law, including under the Adult Protective Services Act, the
4Abused and Neglected Child Reporting Act, the Criminal Code of
52012, and the Disclosure of Offenses Against Children Act.
6    (b) If any provision of this Act, or the application
7thereof to any person or circumstance, is held invalid, the
8remainder of this Act and the application of such provision to
9other persons not similarly situated or to other circumstances
10shall not be affected by the invalidation.
11    (c) This Act shall not apply to:
12        (1) personal information collected, processed, sold,
13    or disclosed subject to the federal Gramm-Leach-Bliley
14    Act, Public Law 106-102, and implementing regulations; and
15        (2) entities subject to, and in compliance with, the
16    Insurance Information and Privacy Protection Act, the
17    Insurance Data Security Law in the Illinois Insurance
18    Code, and any corresponding privacy protection rules
19    adopted by the Director of Insurance.
20    (d) This Act shall not be construed to conflict with, or
21limit the application of, any of the following laws, rules, or
22regulations governing the sharing, collection, processing, or
23disclosure of personal information or health data: the Medical
24Patient Rights Act; the Hospital Licensing Act; Sections 2, 4,
255, 6, 7, 8, 9, 9.3, 9.8, and 11 the Mental Health and
26Developmental Disabilities Confidentiality Act; subsections

 

 

SB2273- 28 -LRB104 11880 BAB 21971 b

1(c) through (f) of Section 10 of the Mental Health and
2Developmental Disabilities Confidentiality Act; and Sections
38-2001 and 8-2001.5 of the Code of Civil Procedure.
4    (e) In the event of a conflict between the provisions of
5this Act and any other law, rule, or regulation listed in
6subsections (c) and (d), the law, rule, or regulation that
7provides the greater right, benefit, or protection to
8individuals shall apply. Nothing in this Act shall be
9construed to diminish or limit any rights, benefits, or
10protections afforded under the laws, rules, or regulations
11referenced in subsections (c) and (d).
 
12    Section 97. Severability. The provisions of this Act are
13severable under Section 1.31 of the Statute on Statutes.
 
14    Section 100. The Consumer Fraud and Deceptive Business
15Practices Act is amended by adding Section 2HHHH as follows:
 
16    (815 ILCS 505/2HHHH new)
17    Sec. 2HHHH. Violations of the Protect Health Data Privacy
18Act. Any person who violates the Protect Health Data Privacy
19Act commits an unlawful practice within the meaning of this
20Act.