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Public Act 099-0429 | ||||
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AN ACT concerning State government.
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Be it enacted by the People of the State of Illinois, | ||||
represented in the General Assembly:
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Section 5. The Department of Public Health Powers and | ||||
Duties Law of the
Civil Administrative Code of Illinois is | ||||
amended by changing Section 2310-675 as follows: | ||||
(20 ILCS 2310/2310-675) | ||||
(Section scheduled to be repealed on January 1, 2016) | ||||
Sec. 2310-675. Hepatitis C Task Force. | ||||
(a) The General Assembly finds and declares the following: | ||||
(1) Viral hepatitis is a contagious and | ||||
life-threatening disease that has a substantial and | ||||
increasing effect upon the lifespans and quality of life of | ||||
at least 5,000,000 persons living in the United States and | ||||
as many as 180,000,000 worldwide. According to the U.S. | ||||
Department of Health and Human Services (HHS), the chronic | ||||
form of the hepatitis C virus (HCV) and hepatitis B virus | ||||
(HBV) account for the vast majority of hepatitis-related | ||||
mortalities in the U.S., yet as many as 65% to 75% of | ||||
infected Americans remain unaware that they are infected | ||||
with the virus, prompting the U.S. Centers for Disease | ||||
Control and Prevention (CDC) to label these viruses as the | ||||
silent epidemic. HCV and HBV are major public health |
problems that cause chronic liver diseases, such as | ||
cirrhosis, liver failure, and liver cancer. The 5-year | ||
survival rate for primary liver cancer is less than 5%. | ||
These viruses are also the leading cause of liver | ||
transplantation in the United States. While there is a | ||
vaccine for HBV, no vaccine exists for HCV. However, there | ||
are anti-viral treatments for HCV that can improve the | ||
prognosis or actually clear the virus from the patient's | ||
system. Unfortunately, the vast majority of infected | ||
patients remain unaware that they have the virus since | ||
there are generally no symptoms. Therefore, there is a dire | ||
need to aid the public in identifying certain risk factors | ||
that would warrant testing for these viruses. Millions of | ||
infected patients remain undiagnosed and continue to be at | ||
elevated risks for developing more serious complications. | ||
More needs to be done to educate the public about this | ||
disease and the risk factors that warrant testing. In some | ||
cases, infected patients play an unknowing role in further | ||
spreading this infectious disease. | ||
(2) The existence of HCV was definitively published and | ||
discovered by medical researchers in 1989. Prior to this | ||
date, HCV is believed to have spread unchecked. The | ||
American Association for the Study of Liver Diseases | ||
(AASLD) recommends that primary care physicians screen all | ||
patients for a history of any viral hepatitis risk factor | ||
and test those individuals with at least one identifiable |
risk factor for the virus. Some of the most common risk | ||
factors have been identified by AASLD, HHS, and the U.S. | ||
Department of Veterans Affairs, as well as other public | ||
health and medical research organizations, and include the | ||
following: | ||
(A) anyone who has received a blood transfusion | ||
prior to 1992; | ||
(B) anyone who is a Vietnam-era veteran; | ||
(C) anyone who has abnormal liver function tests; | ||
(D) anyone infected with the HIV virus; | ||
(E) anyone who has used a needle to inject drugs; | ||
(F) any health care, emergency medical, or public | ||
safety worker who has been stuck by a needle or exposed | ||
to any mucosal fluids of an HCV-infected person; and | ||
(G) any children born to HCV-infected mothers. | ||
A 1994 study determined that Caucasian Americans | ||
statistically accounted for the most number of infected | ||
persons in the United States, while the highest incidence | ||
rates were among African and Hispanic Americans. | ||
(3) In January of 2010, the Institute of Medicine | ||
(IOM), commissioned by the CDC, issued a comprehensive | ||
report entitled Hepatitis and Liver Cancer: A National | ||
Strategy for Prevention and Control of Hepatitis B and C . | ||
The key findings and recommendations from the IOM's report | ||
are (A) there is a lack of knowledge and awareness about | ||
chronic viral hepatitis on the part of health care and |
social service providers, (B) there is a lack of knowledge | ||
and awareness about chronic viral hepatitis among at-risk | ||
populations, members of the public, and policy makers, and | ||
(C) there is insufficient understanding about the extent | ||
and seriousness of the public health problem, so inadequate | ||
public resources are being allocated to prevention, | ||
control, and surveillance programs. | ||
(4) In this same 2010 IOM report, researchers compared | ||
the prevalence and incidences of HCV, HBV, and HIV and | ||
found that, although there are only 1,100,000 HIV/AIDS | ||
infected persons in the United States and over 4,000,000 | ||
Americans infected with viral hepatitis, the percentage of | ||
those with HIV that are unaware they have HIV is only 21% | ||
as opposed to approximately 70% of those with viral | ||
hepatitis being unaware that they have viral hepatitis. It | ||
appears that public awareness of risk factors associated | ||
with each of these diseases could be a major factor in the | ||
alarming disparity between the percentage of the | ||
population that is infected with one of these blood | ||
viruses, but unaware that they are infected. | ||
(5) In light of the widely varied nature of the risk | ||
factors mentioned in this subsection (a), the previous | ||
findings by the Institute of Medicine, and the clear | ||
evidence of the disproportional public awareness between | ||
HIV and viral hepatitis, it is clearly in the public | ||
interest for this State to establish a task force to gather |
testimony and develop an action plan to (A) increase public | ||
awareness of the risk factors for these viruses, (B) | ||
improve access to screening for these viruses, and (C) | ||
provide those infected with information about the | ||
prognosis, treatment options, and elevated risk of | ||
developing cirrhosis and liver cancer. There is clear and | ||
increasing evidence that many adults in Illinois and in the | ||
United States have at least one of the risk factors | ||
mentioned in this subsection (a). | ||
(6) The General Assembly also finds that it is in the | ||
public interest to bring communities of Illinois-based | ||
veterans of American military service into familiarity | ||
with the issues created by this disease, because many | ||
veterans, especially Vietnam-era veterans, have at least | ||
one of the previously enumerated risk factors and are | ||
especially prone to being affected by this disease; and | ||
because veterans of American military service should enjoy | ||
in all cases, and do enjoy in most cases, adequate access | ||
to health care services that include medical management and | ||
care for preexisting and long-term medical conditions, | ||
such as infection with the hepatitis virus. | ||
(b) There is established the Hepatitis C Task Force
within | ||
the Department of Public Health. The purpose of the Task Force | ||
shall be to: | ||
(1) develop strategies to identify and address the | ||
unmet needs of persons
with hepatitis C in order to enhance |
the quality of life of persons with hepatitis C by | ||
maximizing
productivity and independence and addressing | ||
emotional, social, financial, and vocational
challenges of | ||
persons with hepatitis C; | ||
(2) develop strategies to provide persons with | ||
hepatitis C greater access to
various treatments and other | ||
therapeutic options that may be available; and | ||
(3) develop strategies to improve hepatitis C | ||
education and awareness. | ||
(c) The Task Force shall consist of 17 members as follows: | ||
(1) the Director of Public Health, the Director of | ||
Veterans' Affairs, and the Director of Human Services,
or | ||
their designees, who shall serve ex officio; | ||
(2) ten public members who shall be appointed by
the | ||
Director of Public Health from the medical, patient, and | ||
service provider communities, including, but not limited | ||
to, HCV Support, Inc.; and | ||
(3) four members of the General Assembly, appointed
one | ||
each by the President of the Senate, the Minority Leader of | ||
the Senate, the Speaker of the House of Representatives, | ||
and the Minority Leader of the House of Representatives. | ||
Vacancies in the membership of the Task Force shall be | ||
filled in the same
manner provided for in the original | ||
appointments. | ||
(d) The Task Force shall organize within 120 days following | ||
the
appointment of a majority of its members and shall select a |
chairperson and
vice-chairperson from among the members. The | ||
chairperson shall appoint a
secretary, who need not be a member | ||
of the Task Force. | ||
(e) The public members shall serve without compensation and | ||
shall not be reimbursed for necessary expenses incurred in the
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performance of their duties, unless funds
become available to | ||
the Task Force. | ||
(f) The Task Force shall be entitled to call to its | ||
assistance and avail
itself of the services of the employees of | ||
any State, county, or municipal
department, board, bureau, | ||
commission, or agency as it may require and as may be
available | ||
to it for its purposes. | ||
(g) The Task Force may meet and hold hearings as it deems | ||
appropriate. | ||
(h) The Department of Public Health shall provide staff
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support to the Task Force. | ||
(i) The Task Force shall report its findings and | ||
recommendations to the
Governor and to the General Assembly, | ||
along with any legislative bills that it desires to recommend
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for adoption by the General Assembly, no later than December | ||
31, 2015. | ||
(j) The Task Force is abolished and this Section is | ||
repealed on January 1, 2017 2016 .
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(Source: P.A. 98-493, eff. 8-16-13; 98-756, eff. 7-16-14.)
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