Public Act 094-0631
 		





HB0480 Enrolled
LRB094 06314 LJB 36389 b






    AN ACT concerning public health, which may be referred to 
as Adamin and Ryan's Law.

 
    Be it enacted by the People of the State of Illinois,
 
represented in the General Assembly:

 
    Section 1. Short title. This Act may be cited as the 
Newborn Eye Pathology Act.
 
    Section 5. Policy. It is the policy of the State of 
Illinois to make efforts to detect pediatric congenital ocular 
abnormalities that lead to premature death, blindness, or 
vision impairment unless treated soon after birth.

 
    Section 10. Newborn Eye Pathology Advisory Committee. 
    (a) By January 1, 2006, the Department of Public Health 
shall organize a Newborn Eye Pathology Advisory Committee and 
appoint members of the Advisory Committee, including, but not 
limited to, the following:

        (1) Three ophthalmologists with backgrounds in or 
    knowledge of providing services to infants with 
    retinoblastoma, one from the Chicago metropolitan area, 
    one representing DuPage, Kane, Lake, McHenry, and Will 
    counties, and one from the southern counties of Illinois.
        (2) A pediatric ophthalmologist who sees general 
    pediatric patients and is a  designee of the American 
    Association for Pediatric Ophthalmology and Strabismus.

        (3) An academic pediatrician with a background in or 
    knowledge of infant eye pathology.

        (4) Three parents representing families with child 
    blindness or other ocular abnormalities affecting vision, 
    one from the Chicago metropolitan area, one representing 
    DuPage, Kane, Lake, McHenry, and Will counties, and one 
    from the southern counties of Illinois.

        (5) Two community pediatricians.

        (6) A nurse with a background in or knowledge of the 
    current Department's program for instillation of eye drops 
    to prevent conjunctivitis.

        (7) A retinal specialist with research experience in 
    detecting the signs of treatable congenital eye disease.
        (8) An optometrist with a background in or experience 
    with pupil dilation in infants and red reflex screening for 
    intraocular pathology.
    (b) The Advisory Committee members shall serve without 
compensation, but shall be reimbursed for necessary travel 
expenses incurred in the performance of their duties.

    (c) The duties of the Advisory Committee shall be to do all 
of the following:
        (1) Develop and conduct training for hospitals 
    implementing newborn eye pathology.
        (2) Develop a referral system for early intervention 
    services for those infants diagnosed with a congenital 
    abnormality of the eye.
        (3) Develop educational and informational materials 
    for hospital personnel, health care professionals, and 
    parents on appropriate follow-up procedures for infants 
    diagnosed with a congenital abnormality of the eye.
        (4) Monitor any reports made available to the State 
    with respect to the eye pathology status of all newborns.
 
    Section 15. Department of Public Health. 
    (a) All hospitals shall report information on all 
congenital abnormalities or diseases of the eye detected in 
newborns to the Department of Public Health.  Reports shall be 
made to the Department's Adverse Pregnancy Outcomes Reporting 
System.
    (b) The Department of Public Health shall maintain a 
registry of cases of reported congenital abnormalities or 
diseases of the eye in newborns, including information needed 
for the purpose of follow-up service. This information shall be 
treated in the same manner as information under the 
Communicable Disease Report Act.
    (c) Any person or hospital making a report  under this Act 
shall have immunity from any liability, civil or criminal, that 
may result by reason of making the report, except for willful 
or wanton misconduct.
 
    Section 20. Rules. The Department of Public Health shall 
adopt rules necessary to implement this Act.
 
    Section 99. Effective date. This Act takes effect July 1, 
2005.