Public Act 094-0407
 		





HB0612 Enrolled
LRB094 06692 RXD 36786 b






    AN ACT concerning State government.

 
    Be it enacted by the People of the State of Illinois,
 
represented in the General Assembly:

 
    Section 1. Short title. This Act may be cited as the 
Illinois Family Case Management Act.
 
    Section 5. Legislative findings and purpose. The General 
Assembly finds as follows:
        (1) The statewide rate of infant mortality continues to 
    remain at an unacceptable level in regard to the national 
    average.
    
        (2) Within the State of Illinois, certain areas and 
    populations continue to experience rates of infant 
    mortality far greater than either the statewide or national 
    averages.  Prevention activities need to be statewide for 
    maximum benefit.
    
        (3) Family case management services are proven to be 
    effective in improving the health of women and infants and 
    lowering the incidence of infant morbidity and mortality,  
    particularly those individuals linked to the Special 
    Supplemental Nutrition Program for Women, Infants and 
    Children (WIC).

        (4)  Family case management improves the health and 
    development of children and families by providing the 
    earliest identification of their needs and promoting 
    linkages to address those needs.

        (5) Data demonstrates significantly lower Medicaid 
    expenditures for pregnant and postpartum women and 
    children who have been enrolled in family case management 
    and WIC services than for Medicaid-eligible persons not 
    receiving case management services.

    Therefore, as a critical component in delivering 
comprehensive maternal and child health services in Illinois, 
it is the purpose of this Act to provide for the establishment 
and recognition of a program of family case management to 
ensure and provide statewide wrap-around services targeted 
toward reducing the incidence of infant mortality, very low 
birthweight infants, and low birthweight infants within the 
State. 
 
    Section 10. Definitions.  In this Act: 
    "Department" means the Illinois Department of Human 
Services.


    "Eligible participant" means: (i) subject to available 
appropriations, any pregnant woman or child through the age of 
one year enrolled in the Medicaid program on the effective date 
of this Act or whose income is up to 200% of the federal 
poverty level; and (ii) subject to additional appropriations, 
any child through the age of 4 years enrolled in Medicaid or 
whose income is up to 200% of the federal poverty level.

    "Family Case Management program" or "program" means the 
program established under Section 15 of this Act.


    "Infant mortality rate" means the number of infant deaths 
per 1,000 live births as reported on a calendar year basis by 
the federal Department of Health and Human Services.

    "Secretary" means the Secretary of Human Services.


    "Targeted Intensive Case Management" means services 
provided to any program-eligible pregnant woman or infant 
through the age of one, where an assessment has been performed 
that deems the participant at greater risk for infant mortality 
or morbidity.

 
    Section 15. Family Case Management Program.   The Department 
shall establish and administer a family case management 
program.  The purposes of the program shall be to reduce the 
incidence of infant mortality, very low birthweight infants, 
and low birthweight infants and to assist low-income families 
to obtain available health and human services needed for 
healthy growth and development, including but not limited to 
prenatal care, early periodic screening, diagnosis, and 
treatment (EPSDT) services, immunizations, lead screenings, 
nutritional support, and other specialized services for 
families with additional challenges and needs.  Under the 
program, case management shall involve individualized 
assessment of needs, planning of services, referral, 
monitoring, and advocacy to assist a client in gaining access 
to appropriate services.  Under the program, case management 
shall be an active and collaborative process involving a 
qualified case manager, the client, the client's family, and 
service providers in the community.  Priority shall be given to 
ensure that Targeted Intensive Case Management, as defined in 
this Act, is available to each qualified participant as defined 
within the Department's rules and program standards.
 
    Section 20. Maternal and Child Health Advisory Board.  
    (a) The Maternal and Child Health Advisory Board ("the 
Board") is created within the Department to advise the 
Department on the implementation of this Act, including 
assessments and advice regarding rate structure, and other 
activities related to maternal and child health and infant 
mortality reduction programs in the State of Illinois. The 
Board shall consist of the Secretary of Human Services (or his 
or her designee), who shall serve as chairman, and one 
additional representative of the Department of Human Services 
designated by the Secretary who has direct responsibility with 
the family case management program; one representative each 
from the Departments of Children and Family Services, Public 
Health, and Public Aid; and 4 members of the Illinois General 
Assembly, one each appointed by the President and Minority 
Leader of the Senate and the Speaker and Minority Leader of the 
House of Representatives. In addition, the Governor shall 
appoint 20 additional members of the Board.  Of the members 
appointed by the Governor, 2 shall be physicians licensed to 
practice medicine in all of its branches who currently serve 
patients enrolled in the family case management program, one of 
whom shall be an individual with a specialty in obstetrics and 
gynecology and one of whom shall be an individual with a 
specialty in pediatric medicine; 5 representatives, one each 
from certified local health departments within the 5 counties 
with the largest number of family case management enrollees; 5 
representatives from certified local health departments 
outside the Chicago metropolitan and collar counties areas that 
shall include a balance of urban and rural health departments; 
a registered professional nurse serving as a public health 
nurse within a certified local health department; 5 individuals 
representing community-based programs currently providing 
family case management services within Cook County that are not 
certified local health departments; and 2 consumers who are 
receiving or have received family case management services.

     
    Legislative members shall serve during their term of office 
in the Illinois General Assembly. Members appointed by the 
Governor shall serve a term of 3 years or until their 
successors are appointed.  Any member appointed to fill a 
vacancy occurring prior to the expiration of the term for which 
his or her predecessor was appointed shall be appointed for the 
remainder of such term. Members of the Board shall serve 
without compensation but shall be reimbursed for necessary 
expenses incurred in the performance of their duties.

    
    (b) The Board shall advise the Secretary on efforts related 
to maternal and child health programs, including infant 
mortality reduction, in the State of Illinois. In addition, the 
Board shall review and make recommendations to the Department 
and the Governor in regard to the system for maternal and child 
health programs, collaboration, and interrelation between and 
delivery of programs, including but not limited to Family Case 
Management, Targeted Intensive Prenatal Case Management, the 
Special Supplemental Nutrition Program  for Women, Infants and 
Children (WIC), and  HealthWorks, and the adequacy of family 
case management funding and reimbursement levels. In 
performing its duties, the Board may hold hearings throughout 
the State and advise and receive advice from any local advisory 
bodies created to address the infant mortality problem.
    
    (c) The Board shall report to the General Assembly, on 
January 1 of each year, a listing of activities taken in regard 
to this Act, other efforts to address maternal and child health 
and infant mortality in Illinois, and proposed recommendations 
regarding funding and reimbursement levels to adequately 
support the family case management program.

 
    Section 25. Rules.  Within one year after the effective date 
of this Act, the Department shall adopt rules to implement this 
Act.  In developing the rules, the Department shall consult with 
the Maternal and Child Health Advisory Board.
 
    (410 ILCS 220/Act rep.)

    Section 90. The Infant Mortality Reduction Act is repealed.
 
    Section 95. The Prenatal and Newborn Care Act is amended  by 
changing Section 7 as follows:
 



    (410 ILCS 225/7)  (from Ch. 111 1/2, par. 7027)


    Sec. 7. Advisory board consultation. The Department shall 
consult
with the Maternal and Child Health Advisory Board 
created under the Illinois Family Case Management Act
the 
Infant Mortality Reduction Advisory Board, established 
pursuant to
the Infant Mortality Reduction Act, as amended, 
regarding the
implementation of this program.  In addition, the 
Board shall advise the
Department on the coordination of 
services provided under this program with
services provided 
under the Illinois Family Case Management Act
Infant Mortality 
Reduction Act and the Problem
Pregnancy Health Services and 
Care Act.

(Source: P.A. 86-860.)



 

    Section 99. Effective date. This Act takes effect upon 
becoming law.