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Public Act 103-0261 | ||||
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AN ACT concerning regulation.
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Be it enacted by the People of the State of Illinois,
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represented in the General Assembly:
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Section 1. Short title. This Act may be cited as the | ||||
Essential Support Person Act. | ||||
Section 5. Definitions. In this Act: | ||||
"Department" means the Department of Public Health. | ||||
"Essential support" means support that includes, but is | ||||
not limited to: | ||||
(1) assistance with activities of daily living; and | ||||
(2) physical, emotional, psychological, and | ||||
socialization support for the resident. | ||||
"Facility" means any of the following: a facility as | ||||
defined in Section 10 of the Alzheimer's Disease and Related | ||||
Dementias Special Care Disclosure Act; an assisted living | ||||
establishment or shared housing establishment as defined in | ||||
Section 10 of the Assisted Living and Shared Housing Act; a | ||||
Community Living Facility as defined in Section 3 of the | ||||
Community Living Facilities Licensing Act; a facility as | ||||
defined in Section 2 of the Life Care Facilities Act; a | ||||
continuum of care facility as defined in Section 10 of the | ||||
Continuum of Care Services for the Developmentally Disabled | ||||
Act; a facility as defined in Section 1-113 of the Nursing Home |
Care Act; a MC/DD facility as defined in Section 1-113 of the | ||
MC/DD Act; an ID/DD facility as defined in Section 1-113 of the | ||
ID/DD Community Care Act; a hospice program as defined in | ||
Section 3 of the Hospice Program Licensing Act; a Supportive | ||
Residence as defined in Section 10 of the Supportive | ||
Residences Licensing Act; a facility as defined in Section | ||
1-102 of the Specialized Mental Health Rehabilitation Act of | ||
2013; a home, institution, or other place operated by or under | ||
the authority of the Department of Veterans' Affairs; an | ||
Alzheimer's disease management center alternative health care | ||
model under the Alternative Health Care Delivery Act; and a | ||
home, institution, or other place that is a State-operated | ||
mental health or developmental disability center or facility. | ||
"Facility" does not include a hospital as defined in the | ||
Hospital Licensing Act or any hospital authorized under the | ||
University of Illinois Hospital Act. "Facility" does not | ||
include any facility that the Department of Public Health or | ||
the Department of Veterans' Affairs does not regulate. | ||
"Office" means the Office of State Long Term Care | ||
Ombudsman. | ||
"Person-centered care plan" means a care plan for a | ||
resident developed by the resident or resident's | ||
representative in consultation with health professionals that | ||
focuses on the resident's physical, emotional, psychological, | ||
and socialization needs and describes the resident's right to | ||
designate a primary essential support person or secondary |
essential support person. | ||
"Primary essential support person" means a person | ||
designated by a resident, or the resident's representative, | ||
who has access to the resident in accordance with rules set by | ||
the Department to provide essential support according to the | ||
resident's person-centered care plan. | ||
"Resident" means a person who is living in a facility or is | ||
seeking admission to a facility. "Resident" includes a | ||
guardian of the person or an agent for the person under a power | ||
of attorney. | ||
"Secondary essential support person" means a person | ||
designated by the resident, or the resident's representative, | ||
to serve as a backup to a primary essential support person. | ||
Section 10. Essential support persons. A resident or the | ||
resident's representative may designate a primary essential | ||
support person and a secondary essential support person who | ||
shall have access to the resident despite general visitation | ||
restrictions imposed on other visitors, provided that the | ||
primary essential support person or secondary essential | ||
support person complies with any rules adopted by the | ||
Department under Section 15 to protect the health, safety, and | ||
well-being of residents. A facility must explain to a resident | ||
or the resident's representative what a primary essential | ||
support person and a secondary essential support person are. |
Section 15. Statewide policy; disaster declaration. | ||
(a) The Department shall establish a statewide policy for | ||
visitation with a resident. The policy shall apply to all | ||
facilities and shall incorporate a resident's need for health, | ||
safety, and well-being, including, but not limited to, the | ||
essential support provided by a primary essential support | ||
person or secondary essential support person. | ||
(b) If the Governor issues a proclamation under Section 7 | ||
of the Illinois Emergency Management Agency Act declaring that | ||
a disaster relating to a public health emergency exists, the | ||
Department shall, in accordance with applicable federal | ||
requirements and guidance, set forth requirements for access | ||
to a resident, provided that the requirements shall | ||
incorporate a resident's need for essential support provided | ||
by a primary essential support person or secondary essential | ||
support person. The requirements shall include, but need not | ||
be limited to, the circumstances, if any, under which a | ||
facility may restrict visitors, including, but not limited to, | ||
primary essential support persons and secondary essential | ||
support persons designated by a resident. The requirements | ||
shall address, at a minimum, the following: | ||
(1) Arrangements for regular visitation by visitors | ||
and other residents through various means, including, but | ||
not limited to: | ||
(A) outdoor visitation; | ||
(B) the use of technologies to facilitate virtual |
visitation when all other forms of visitation are | ||
unavailable; and | ||
(C) indoor visitation, including, but not limited | ||
to, indoor visitation 24 hours per day, 7 days per week | ||
when the resident is nearing the end of his or her life | ||
as determined by any one or more of the resident's | ||
attending health care professionals. | ||
(2) The needs of a resident for physical, emotional, | ||
psychological, and socialization support based on the | ||
resident's person-centered care plan. | ||
(3) Safety protocols for all visitors to a facility, | ||
including, but not limited to, primary essential support | ||
persons or secondary essential support persons, if the | ||
Governor issues a proclamation under Section 7 of the | ||
Illinois Emergency Management Agency Act declaring that a | ||
disaster relating to a public health emergency exists. | ||
(4) Allow access to a resident by a primary essential | ||
support person or secondary essential support person | ||
despite general visitation restrictions, provided that the | ||
primary essential support person or secondary essential | ||
support person complies with safety protocols established | ||
by the Department. | ||
(5) If a resident has not designated a primary | ||
essential support person, a requirement that facility | ||
staff work with the resident or the resident's | ||
representative, a family member of the resident, or a Long |
Term Care Ombudsman to identify a primary essential | ||
support person and provide him or her access to the | ||
resident. | ||
Section 20. Office of State Long Term Care Ombudsman | ||
requirements. | ||
(a) The Office of State Long Term Care Ombudsman shall: | ||
(1) identify, investigate, and resolve complaints that | ||
relate to an action, inaction, or decision that may | ||
adversely affect the health, safety, welfare, or rights of | ||
residents, including the welfare and rights of residents | ||
with respect to primary essential support persons and | ||
secondary essential support persons. | ||
(2) provide services to protect the health, safety, | ||
welfare, and rights of residents, including, but not | ||
limited to, services designed to address the impact of | ||
socialization, visitation, and the role of primary | ||
essential support persons or secondary essential support | ||
persons in the health, safety, and well-being of | ||
residents; | ||
(3) inform residents of available means of obtaining | ||
the services described in paragraph (2); | ||
(4) recommend any changes in the laws, rules, or | ||
policies of this Act or actions required under this Act | ||
that the Office determines to be appropriate; and | ||
(5) facilitate public comment on the laws, rules, or |
policies of this Act or actions required under this Act.
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Section 99. Effective date. This Act takes effect upon | ||
becoming law.
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